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The problem
Intervention: Not an intervention study—this is an observational analysis of caregiver well-being across different sociodemographic and contextual factors
Who it was tested with: 234 caregivers of individuals with FASD (predominantly women, mean age 54, 67% in Canada, 69% adoptive caregivers).
Experience from people who deliver programmes: stories, case studies and lessons learned. Valuable for understanding how and why, and for spotting what to test next, but not a measure of effect.
"Data for this study were collected between 2021 and 2025, gathered at baseline as part of an ongoing international longitudinal survey about caregiver experiences and perspectives of raising people with FASD (N = 234). Information on sociodemographic factors, family characteristics, and caregiver well-being was analyzed." This is an observational study documenting caregiver characteristics and well-being associations rather than testing an intervention, so it provides descriptive evidence about the caregiver population and contextual factors associated with well-being.
This is a baseline descriptive analysis without intervention or comparison groups, so no causal conclusions can be drawn. The cross-sectional design captures associations but not temporal relationships. The sample is predominantly female and Canadian, limiting generalizability.
Across countries and designs
9 studies · 9 countries
