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The problem
Intervention: Home-based Sickle Cell Collaboration for Child Development (SCCCD) intervention combining skilled occupational therapy, Parents as Teachers curriculum, and sickle cell disease-specific caregiver education delivered over 12 monthly home visits.
Who it was tested with: Infants and toddlers with sickle cell disease under 3 years of age and their caregivers (target n=25 for intervention arm)..
The same group is measured before the intervention and again afterwards, with a baseline and an endline and sometimes a midline. Change is visible, but other causes cannot be ruled out.
"The SCCCD intervention, adapted from a pilot study, combines skilled occupational therapy, the Parents as Teachers curriculum, and SCD-specific caregiver education, delivered over 12 monthly home visits (n=25, aim 2)." The study tests whether this home-based intervention improves developmental outcomes in children with sickle cell disease who have high rates of undiagnosed developmental delays.
This is a protocol paper; no intervention results are yet available. The study is still actively recruiting and data collection is incomplete. The design includes no concurrent comparison group for the intervention arm, limiting causal inference.
Across countries and designs
1 study · 1 country
