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The problem
Intervention: Mixed-participant codesign process involving eight longitudinal virtual sessions over five months with adolescent patients, parents, bereaved parents, oncologists, and psychosocial clinicians working together to develop communication interventions
Who it was tested with: Adolescents aged ≥12 years with advanced cancer (n=4), parents of children with advanced cancer (n=5), bereaved parents (n=4), oncologists (n=5), and psychosocial clinicians (n=3).
Experience from people who deliver programmes: stories, case studies and lessons learned. Valuable for understanding how and why, and for spotting what to test next, but not a measure of effect.
"We conducted eight longitudinal virtual mixed-participant codesign sessions across four sequential blocks spanning 5 months" with "enrollment and attendance" as feasibility outcomes, and "structured reflections from each session" analyzed to understand participant experiences. This describes a feasibility assessment of a codesign process rather than a randomized trial, placing it at the practitioner evidence tier.
This is a small feasibility study without comparison group or outcome measurement of intervention effectiveness. It does not assess whether the codesigned interventions were implemented or produced measurable improvements in patient or family outcomes.
Across countries and designs
1 study · 0 countries
