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The problem
Intervention: Structured approach to information provision, shared decision-making process, and comfort-focused care in neonatal intensive care unit
Who it was tested with: Parents of 51 neonates who died after treatment was redirected to comfort-focused care in a tertiary neonatal intensive care unit.
Experience from people who deliver programmes: stories, case studies and lessons learned. Valuable for understanding how and why, and for spotting what to test next, but not a measure of effect.
"This observational, retrospective study was conducted in the NICU of a tertiary-level hospital. Data were collected using a structured questionnaire administered to parents following the death of their neonate." The study describes current practice in end-of-life decision-making rather than testing a novel intervention, providing practitioner-level evidence about what parents experience and value in this sensitive context.
Retrospective design with 51% response rate; no comparison group; relies on parent recall and perception rather than objective measurement of decision-making quality; country and hospital location not specified
Across countries and designs
1 study · 0 countries
