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The problem
Intervention: Parent-FORT: a virtually-delivered group therapy program adapted from the Fear of Recurrence Therapy (FORT) for adult cancer survivors, modified specifically for parents of childhood cancer survivors through co-design with 10 parents
Who it was tested with: Parents of survivors of childhood cancer in Canada (Alberta and Ontario), minimum one month post-treatment of their child.
Experience from people who deliver programmes: stories, case studies and lessons learned. Valuable for understanding how and why, and for spotting what to test next, but not a measure of effect.
"Using the ADAPT and FRAME frameworks, we collaborated with 10 parents with lived experience to modify FORT for this population. Following adaptation, two trained therapists facilitated a usability trial of the adapted program (Parent-FORT) with one group of parents. Therapists and participants completed feedback questionnaires after each session to assess usefulness, usability, and readiness for future users, as well as a final exit interview." This describes a usability study design rather than an efficacy trial, making it practitioner-level evidence of feasibility and acceptability.
Small sample size (n=4 completers) from only two Canadian provinces limits generalizability. No control group, no measurement of clinical outcomes or actual reduction in fear of cancer recurrence. Study assessed acceptability and usability rather than efficacy. No follow-up data on sustained impact.
Across countries and designs
1 study · 1 country
