Unmet Medical Needs in Pediatric Endocrinology: A Position Statement from the European Society for Paediatric Endocrinology Clinical Practice Committee and Council Joint Initiative.

This position statement from the European Society for Paediatric Endocrinology identifies major barriers that children with complex endocrine disorders face across Europe. The key problems are diagnostic uncertainty due to non-standardized criteria, fragmented care pathways with poor coordination between pediatric and adult services, gaps in drug development for small patient populations, and inadequate psychosocial and financial support for families. The statement calls for coordinated action to improve research, standardize diagnostics and training, ensure equitable access to care and medicines, and strengthen patient advocacy networks.