Peer-reviewed article
[Parental satisfaction with home monitoring in children with complex congenital heart diseases (CCHD): A cross-sectional study].
Aschenbrenner PF, Kaya M ·
Summary
Written by AI, not yet AICS's view ·Key points
Limitations
Abstract
Background Complex congenital heart disease requires specialized care and intensive support for families during infancy. The home monitoring program bridges the gap between inpatient and outpatient care. The aim of the study was to evaluate parental acceptance and satisfaction. Patients Infants and young children (0-1 year) with complex congenital heart diseases. Methods From November to December 2024, 201 parents from the DACH region were surveyed using an online questionnaire. Sociodemographic information, experiences with home monitoring, additional medical measures, support services and suggestions for improvement were recorded. 167 valid data sets were evaluated descriptively and using chi-square tests. Results 80.8% of parents were very satisfied. The accessibility of the facility (85.0%) and contact with the physician (85.6%) were rated particularly positively. 79.6% reported an increased sense of security, 70.7% reported a contribution to their child's health, and 52.7% reported a reduction in their own stress levels. Follow-up care (55.1%) and family support (34.1%) were frequently used as additional support services. Suggestions for improvement mainly concerned digital solutions. Discussion The results illustrate the benefits of HM and show new findings as well as parallels to international studies. The HM should be further developed through digital methods. Conclusion Home monitoring is predominantly viewed positively by most families and, according to parents, improves their children's safety and health.